New Site

Finally I have the new site up and running. I am so excited to have this new forum and blog to share my stories and experiences with ARPKD. So feel free to poke around and check back because there are more updates and information to come.

My son Henry will still make his way into this blog but for the most part I'm going to be blogging about ARPKD from a mom's perspective. My ultimate goal is to help raise awareness and further reach out to moms and dads in the ARPKD community.

So I hope you enjoy this blog and take the ARPKD journey with me. Here's to loving, laughing, learning and living!