Let the Fundraising Begin

It's been a while and so much has happened. Chris, Henry and I took a much needed vacation to San Diego and attended the PKD national convention. There was so much information and so many great people. It was inspiring, scary, emotional and so many more things all wrapped up into one. I have lots to talk about and share but am saving that for another day.

Henry turned 1 on August 20th!! The fact that he hit that milestone is so amazing to me. I remember when Henry was born reading online how if a baby survives the first year of life with ARPKD that their chance of survival increases. So for Henry to hit that milestone just meant so much to us.

We've been busy getting all the one year testing done, so lots of visits with the pediatrician, nephrologist, dietician, pulmonologist and lots of tests like echo cardiograms, ultrasounds and lung capacity tests.

To top all this off I finally got around to setting up our PKD walk page here http://www.pkdcure.org/Henry. Our goal is to raise $5,000 before the walk on September 25th. So check out our page, spread the word, sign up to walk and donate if you can. All the money our team raises goes directly to ARPKD studies.

I'll end the blog post with a little snipit of Henry's one year birthday invite that I designed. His party was so much fun. He thoroughly enjoyed himself and his monkey cake.